tag:blogger.com,1999:blog-2618275792303567498.post226615654882845877..comments2023-05-27T01:28:05.785-07:00Comments on MummyRants: DO YOU KNOW WHAT BATTEN DISEASE IS?FoodMusterhttp://www.blogger.com/profile/13271429146257966057noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2618275792303567498.post-13833522321791208512011-02-15T02:21:54.449-08:002011-02-15T02:21:54.449-08:00Wow - no, I'd never heard of this condition be...Wow - no, I'd never heard of this condition before. The interview with the mum had me in floods. What a hideously cruel thing to happen to any family. I understood a tiny bit of how she felt - "being out in the cold and looking in" when all the other mums were talking about "normal" stuff. People never mean to be cruel but they forget. They can't ever imagine this stuff happening to them. There should be way more in terms of support for families and siblings out there. So sad.<br />Thanks for making me more aware xwishihadakarmaanghiahttps://www.blogger.com/profile/01567554348537949592noreply@blogger.comtag:blogger.com,1999:blog-2618275792303567498.post-46747320479346920162011-01-21T04:14:25.755-08:002011-01-21T04:14:25.755-08:00Firstly you have a great and good heart. And it is...Firstly you have a great and good heart. And it is so important for those of us whose lives aren't impacted by conditions like this to be aware and to care. Thank you so much for this. xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2618275792303567498.post-958300599420928072011-01-21T01:29:07.609-08:002011-01-21T01:29:07.609-08:00I "know" a young man with this tragic co...I "know" a young man with this tragic condition. His name is Bryce and his family are incredible people who are finding it hard.<br /><br />We all need to have our eyes opened to things beyond our own backyard.<br /><br />I know - my son has Asperger Syndrome and as his advocate I need to educate others so that his path in life is not full of obstacles thrown up by ignorance.Madmotherhttps://www.blogger.com/profile/18189416781378632230noreply@blogger.comtag:blogger.com,1999:blog-2618275792303567498.post-29134260978351880602011-01-20T19:32:09.262-08:002011-01-20T19:32:09.262-08:00Phew, that was tough. But necessary. I have always...Phew, that was tough. But necessary. I have always been fascinated by different genetic disorders and then when I became a mother it was an entirely different reasons. My heart just goes out to these mums and it reminds me that I really don't have a lot to complain about.<br /><br />I am grateful and inspired by people like yourself who have hearts big enough to care for special kids. xMaxabellahttps://www.blogger.com/profile/15761220164069379437noreply@blogger.com